Forschung Contra Blindheit - Initiative Usher-Syndrom e.V.
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| UsherNet.org > What is Usher-Syndrome > Usher Study by Mary Guest > Summary | ||||
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Retinitis Pigmentosa Genetics Problems Reaction of Friends What to do Planning of Future Summary |
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SummaryIt is necessary to improve treatment and services for people with Usher syndrome. This improvement will come only when professionals dealing with deaf people know about this condition, when we know how many people have it, when we stop looking at bits of people and attend to the whole and when we show a deeper concern for those who must live their lives deprived of much of their sensory input. |
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© Forschung Contra Blindheit - Initiative Usher-Syndrome A charity registered in Germany, Magistrate Court, Hamburg, Germany, Reg. No. VR 14423 |